Celebrating Week 26!

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Celebrating Week 26!

 

(Kim’s note: for those of you who waited for this post right on time, and it didn’t show – sorry about that. I think WordPress is still adjusting to the end of Daylight Savings Time. 🙂 It’ll be all fixed by next week.)

Wowzers. Really? So many times this week, I’ve sat back and thought, “Wow. I can’t believe I’ve made it this far with you, Kyle. I am so blessed.”


But yet, here we are. And here we go. 🙂

How far along? 26 weeks, 4 days.
Total weight gain/loss: + 18 lbs.
Maternity clothes? Yep. I think there’s a pair of jeans somewhere that I really like…
Sleep: Really really good this week. No more restless leg syndrome this week. 🙂
Best moment this week: Hearing from a new friend that her baby boy, who we thought would be in the same situation as our Kyle, is in fact, completely fine. Or healed. Whichever you want to call it.


Movement: Yes. I seriously think he’s bigger than the 13 ounces they’re saying he is. I mean, I can see my stomach moving.
Food cravings: Mexican, I think. I made a 2 week menu for the family – and there was something Mexican on it for 4 of the 14 nights. Should tell me something.
Anything making you queasy or sick: I actually vomited twice this week?! So weird to have that coming on this late in the game. But it seems to have dissipated quite a bit too.
Have you started to show yet: Yep.

Gender Predictions: Boy, boy, boy.

Labor Signs: A few contractions this week – all Braxton Hicks, though, nothing painful, and nothing severe or longer than a few seconds.
Belly Button in or out? IN
Wedding rings on or off? On – still on my right hand. They might not ever switch.
Happy or Moody most of the time: It was a pretty good week. A few down days – but more good than bad.
Weekly Wisdom: Living by faith: what happens when you have nothing else to lean on. No doctors, no medicine, and no better of the two to buy if you had more money. All you have left is God. This is faith.
Milestones: Baby measured in at 13 ounces. This is 22 ounces smaller than he should be right now.

Exercise: Nope. Can’t chance that preeclampsia creeping in.

Weekly Prayer Request: This is the “write out your birth plan week”. We’re hoping to have it done before Thanksgiving, so we can present it to all the NICU doctors and nurses who might be over Kyle’s care before everyone begins going their separate ways for the holidays. And my sister and I are throwing a baby shower for my other sister. I’m not gonna lie. That’s gonna be tough.

Hey there, Little One.

What a week. Not only was there the regular “let’s go see Baby Kyle” day, and the day filled with your sister’s violin lessons and speech therapy appointments. But there was also the big NICU doctor visit. You’d like this doctor. She’s a sweet one.

And after seeing all your info, she doesn’t know how you’re still alive. None of us do. You shouldn’t be. There are so many things “wrong” with you that she’s never seen anything like it before. Sure, she’ll see a baby with one of your “issues” come through her NICU – but never all of them together.

You’ll need about 9 operations in your first year of life. The first one being minutes after birth. The other one being a few minutes after the first. But only if you’re 4 pounds. They can’t operate on a heart that’s half the size of a jellybean. And on the right side of your chest. And upside down.

Then there’s your stomach. Which, up until this week, we didn’t think you had. But now we see it. It’s where your heart should be. And while we don’t see how it’s working…it has to be, because your mouth is opening and closing – swallowing fluid like you should be. And your bladder is always full. And your two kidneys are working. So something is happening between there and there. We just can’t see what. And how.

We saw a baby this week. A tiny baby boy. His whole foot was the size of the “return” button on my wireless Mac keyboard. And he was over twice the size you are now. I think I’ll be doing some serious alterations to your outfit.

Your dad and I have to decide what to do – and what not to do – in the minutes after you are born. This, of course, assuming you’ll be in the 10% odds and be born alive. I think you will. I don’t know how you’re hanging on this long not to make it to the beginning. Even if the beginning is within seconds of the end. I don’t know how anyone could ever make these decisions for someone else. Much less for their own child whom they love so dearly. But, I can promise that every decision is bathed in so much prayer and we’ve gathered as much information as we can to make these decisions. So, no matter what we decide, we will do what is best for you. We promise. And God “orders the steps of a good man” – He will not let us make a mistake with you.

On that note, I hope you’re enjoying your first fall as much as your sisters are.

I love you so much, Son. And I’m so happy that I get to by your Mom. So very happy.

I’ll see you again tomorrow – you’ll probably be all over the place again. You sure do like giving your sisters a show to watch these days. I can’t wait. And until then, know that I love you. And I always will.

XOXOX,

Mom

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About Kim

I am a sinner, miraculously saved by grace, living by faith, and pressing toward the mark of being more like Christ. I absolutely love being a stay-at-home mom! I'm also a caterer for a few weddings throughout the year, a baker, and a party planner. And I love to play in other people's kitchens as well as my own! My husband, Chris, just finished his studies for his MA degree in Pastoral Studies. He's a wonderful (and super smart!) daddy - and the most loving and supportive husband. My two beautiful daughters, Chloe and Kami, are the joys of our lives! We pray that they both would be greatly used of the Lord. Throughout their short time here on earth, we have learned so much about ourselves, our God, and the gratefulness we have towards our own parents, who raised us in the ways of God's Word. Our third unborn child is a blessing as well - even after its recent pre-diagnosis of Trisomy 18, or Edwards Syndrome. This blog has kinda turned into a little journal of sorts of our dark journey down this rather uncommon road. I stay busy cooking, cleaning, gardening, and raising the plants I killed back to life, and homeschooling. I blog when get the chance. :) We are always happy to have visitors, so please stop by anytime! Although, if you do give us a call first, we'll make sure to have some fresh cookies and sweet tea available when you arrive!

One response »

  1. I am glad to hear that things are going so well with little Kyle, and I know that God will continue to work in him. While we were waiting at a restaurant to be seated, we heard from someone that had a sister that just had a baby with same condition as Kyle. She entered the world weighing only 3lbs and a few ounces, but she did arrive alive. Her name is Tuesday Hope. Please pray for her, as we will continue to pray for you and Kyle.

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